In my desire to establish a measurable, goal-oriented communication plan, I get a little caught up in structure. In methodology. In creating a reproducible, consistent set of tools. I fall into my own trap of intellectualizing and go so deep I completely lose sight of how to bring it to Owen in any kind of [...]
previously presented speech – ‘Emerging Communication’
by jennifer on 21. Feb, 2008 in communication - general, essays + speeches, social
Following is the speech/presentation I wrote and delivered for the Children’s Treatment Network – a new virtual therapy center for children with disabilities for York Region (the region north of Toronto). It is ‘virtual’ because there is no physical location – therapists are connected and referred by phone, email and web services. The audience was [...]
position available
by jennifer on 20. Feb, 2008 in employment available
Role: Communication and Learning Facilitator Location: Downtown Toronto Salary: $15-18/hr Submit Resume to: jennifer@johannesen.ca Our family is seeking a Communication and Learning Facilitator for our 9-year-old son. You will be an active participant in contributing to and executing a structured Communication Program to assist him with developing expressive communication and reinforcing his receptive ASL skills. [...]
an old article I wrote
by jennifer on 20. Feb, 2008 in essays + speeches
This article appeared in the June 2004 edition of Connections (which is now called Bloom) – a publication of Bloorview Kids Rehab. I’m ‘reprinting’ it here with the aim of starting a collection of essays, speeches and thoughts – some previously recorded, some still to come. “My five-year-old son is the wisest person I know” [...]
new wheelchair!
by jennifer on 17. Feb, 2008 in equipment, seating, switch use, wheelchair
Several days ago, Owen was kitted out with a demo wheelchair – the same one I discussed earlier in this blog. It’s called a Kids Rock dynamic wheelchair, and has a special spring-like action that engages when Owen becomes spastic or reflexive. If he thrusts (straightens at the hips while sitting), the hinge between the [...]
high tech. sort of.
by jennifer on 12. Feb, 2008 in equipment, switch use
As I continue to contemplate Owen’s capacity for choice-making (and his communication partners’ capacities for offering choices), I have not ruled out other options for communication. In a previous post I mentioned that he was very successful when using a switch-activated signal, which we used for ‘reading’ a book. (I would sign the part of [...]
response to last post
by jennifer on 08. Feb, 2008 in communication - general, movies/books/media
Regarding my last post, a comment from my dad, SKJ: You are surely too hard on yourself. “Presentable” and “regular” are the loaded words, the dark suspicion that your quest for communication is some sort of misguided response to shame. It is not Owen’s humanity that is on the table, but yours, ours, all of [...]
Movie: The Diving Bell + The Butterfly
by jennifer on 07. Feb, 2008 in movies/books/media
I won’t typically be posting movie reviews, but this one is so ‘on topic’ I want to share a bit about my experience seeing this movie. Brief description: Based on a true story. A French man with a vibrant, exciting life has a massive stroke and becomes completely locked in his body, unable to move [...]
Recent Comments
6th Jul 10
The word 'random' strikes me. As actual for the reality.
5th Jul 10
That's an enlightening and sobering post. I keep thinking about whether we would have done the surgeries Ben had in ...
4th Jul 10
Thanks for your comments Pamela and Claire... I frequently hear stories of patients (and parents) dissatisfied with their encounters with specialists ...
3rd Jul 10
Wow, what a difficult post. I've read it over a few times and I get it. We are, ...
3rd Jul 10
Wow. As someone also navigating the Ontario medical system (with a younger child), I really appreciate the insight of ...
4th Jun 10
awesome photos. Very excited you got away to NYC. I would have a very hard time consenting to treatment that I ...
3rd Jun 10
Hey Louise, I would certainly guess it's been done more in the US - but everything at this point is anecdotal. ...
3rd Jun 10
That's very disappointing -- especially because of the incredibly vague responses re risks and benefits. It's easy for a surgeon to ...
2nd Jun 10
"I guess that saying is applicable here: when all you have is a hammer, everything looks like a nail. ...
10th May 10
I agree! And appreciate the honesty in both of your blogs.