I’d rather tell the story when I know how it ends. Mostly pictures for now. Above: Before the delightful ‘nasal trumpet’ was removed. These 2 photos were taken this evening. Definitely improving. I can tell because he’s finally smiling.
Archive | March, 2008
March Break
by jennifer on 12. Mar, 2008 in baclofen pump issues, medical
Very brief photo journal of the past 3 days. To be continued.
portable, adaptable communication
by jennifer on 02. Mar, 2008 in communication - general, equipment
Talking and hearing. Two things most of us, including myself, can do without any props or devices. Which means I’m fairly portable – I can dash out the door and trust that if I need to communicate with someone about something, I can. I think about this a lot in respect to Owen. Not that [...]
Recent Comments
6th Jul 10
The word 'random' strikes me. As actual for the reality.
5th Jul 10
That's an enlightening and sobering post. I keep thinking about whether we would have done the surgeries Ben had in ...
4th Jul 10
Thanks for your comments Pamela and Claire... I frequently hear stories of patients (and parents) dissatisfied with their encounters with specialists ...
3rd Jul 10
Wow, what a difficult post. I've read it over a few times and I get it. We are, ...
3rd Jul 10
Wow. As someone also navigating the Ontario medical system (with a younger child), I really appreciate the insight of ...
4th Jun 10
awesome photos. Very excited you got away to NYC. I would have a very hard time consenting to treatment that I ...
3rd Jun 10
Hey Louise, I would certainly guess it's been done more in the US - but everything at this point is anecdotal. ...
3rd Jun 10
That's very disappointing -- especially because of the incredibly vague responses re risks and benefits. It's easy for a surgeon to ...
2nd Jun 10
"I guess that saying is applicable here: when all you have is a hammer, everything looks like a nail. ...
10th May 10
I agree! And appreciate the honesty in both of your blogs.