(photo: Owen’s 11th birthday. With Angus.)
Here’s the truth of the matter: I don’t know anymore.
I don’t know what. I don’t know how. I don’t know if. I don’t know when. I don’t know why.
But I used to. What changed?
My guess is that until now, I thought my challenges were kind of hard but not gruelling. [...]
Filed under: family, musings on August 20th, 2009 | 4 Comments »
(photo: summer fun at the cottage)
I have been thinking lately about my role as Owen’s primary caregiver and advocate and the process involved in making tough medical and care-related decisions. I’d always thought it was quite simple: do what I think is right given what I believe to be true at the time. ‘Right’ means [...]
Filed under: family, musings on August 15th, 2009 | 1 Comment »
(Another random photo of the boys – eastern Beaches in Toronto.)
As I mentioned in my last post, I’ve received a few messages from readers sharing their stories about their own children (presumably all with disabilities) who have died – some recently, some long ago. I was moved and honoured to receive these stories, and I [...]
Filed under: family, musings on August 4th, 2009 | No Comments »