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Raising a boy with multiple severe disabilities

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Monthly Archives: August 2009

water

Commencing Phase 2 (or is it 3? 4?)

August 20, 2009

(photo:  Owen’s 11th birthday.  With Angus.) Here’s the truth of the matter:  I don’t know anymore. I don’t know what. I don’t know how. I don’t know if. I don’t know when. I don’t know why. But I used to.  … Continue reading →

Posted in family, musings | Replies: 5
Owen and Jennifer

Life as the Decider.

August 15, 2009

(photo:  summer fun at the cottage) I have been thinking lately about my role as Owen’s primary caregiver and advocate and the process involved in making tough medical and care-related decisions.  I’d always thought it was quite simple:  do what … Continue reading →

Posted in family, musings | Replies: 1
beach

Is this the time I will look back upon and say “I had a feeling”?

August 4, 2009

(Another random photo of the boys – eastern Beaches in Toronto.) As I mentioned in my last post, I’ve received a few messages from readers sharing their stories about their own children (presumably all with disabilities) who have died – … Continue reading →

Posted in family, musings | Reply

Upcoming

- Parent Workshop at Holland Bloorview, Feb 15, 7-9 pm

- Guest on CBC Radio One's Alberta at Noon, Feb 6, 12:30 (Mountain)

- Guest on CBC Radio One's Blue Sky (Saskatchewan), Feb 6, 12:30 (Central)

- Download podcast from CBC Radio One's Ontario Today (Jan 19)

No Ordinary Boy

No Ordinary Boy is now available! Visit the website for more info and to purchase.

Things have changed

I started this blog 2 years ago in 2009, to explore communication options for my son with multiple, severe disabilities.

Sadly, Owen passed away in October 2010. He was 12.

I will be continuing to blog here as I move on to the next phase of my journey as Owen's mother - whatever that looks like.

Thank you for visiting,
- Jennifer

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  • a moon, worn as if it had been a shell
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  • I am a broken man you can't break me
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Recent Posts

  • The best of intentions
  • What I mean by Hope as Snake-oil (3 of 3)
  • Book signing
  • What I mean by Cheerful Pretend (2 of 3)
  • What I mean by Fake Work (1 of 3)
  • Fake work, hope as snake oil, protecting childhood – and other inspiring topics
  • CBC radio interview, short video, book signing
  • Upcoming parent workshop (free) at Holland Bloorview!
  • Christmas ramblings
  • Another time and place
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