Comments on: Compassion Fatigue http://johannesen.ca/yesorno/2009/musings/compassion-fatigue/ Exploring the decisions and issues in raising a boy with multiple severe disabilities, who has no diagnosis. Wed, 07 Jul 2010 02:47:14 +0000 hourly 1 http://wordpress.org/?v=3.0 By: elizabeth http://johannesen.ca/yesorno/2009/musings/compassion-fatigue/comment-page-1/#comment-3950 elizabeth Sat, 17 Oct 2009 06:27:28 +0000 http://johannesen.ca/yesorno/?p=184#comment-3950 I get this -- mainly the boredom part. I'm so fucking bored sometimes with my life as a caregiver that I could scream. But even that scream is boring! Thank God for books and movies and good food and my dear, dear friends. Thank God for the bloggers whom I love, for those who make me laugh. Thank God for my dogged sense of humor. And thanks for this most honest post. I get this — mainly the boredom part. I’m so fucking bored sometimes with my life as a caregiver that I could scream. But even that scream is boring! Thank God for books and movies and good food and my dear, dear friends. Thank God for the bloggers whom I love, for those who make me laugh. Thank God for my dogged sense of humor. And thanks for this most honest post.

]]> By: Claire http://johannesen.ca/yesorno/2009/musings/compassion-fatigue/comment-page-1/#comment-3923 Claire Sat, 10 Oct 2009 22:35:47 +0000 http://johannesen.ca/yesorno/?p=184#comment-3923 I know...and my comments often sound much harsher than I intend them to sound! I should probably learn how to use those smiley face things....trying....trying...gonna have to ask the eldest!!! I know…and my comments often sound much harsher than I intend them to sound! I should probably learn how to use those smiley face things….trying….trying…gonna have to ask the eldest!!!

]]> By: jennifer http://johannesen.ca/yesorno/2009/musings/compassion-fatigue/comment-page-1/#comment-3922 jennifer Sat, 10 Oct 2009 21:43:07 +0000 http://johannesen.ca/yesorno/?p=184#comment-3922 Hey Claire, thanks for the comments... I have to admit I find it exhausting to try and present all the sides to everything I feel. As always, my blog posts are a moment in time... Thanks for rounding out the dialogue :) J Hey Claire, thanks for the comments…

I have to admit I find it exhausting to try and present all the sides to everything I feel. As always, my blog posts are a moment in time… Thanks for rounding out the dialogue :)

J

]]> By: Claire http://johannesen.ca/yesorno/2009/musings/compassion-fatigue/comment-page-1/#comment-3919 Claire Sat, 10 Oct 2009 17:59:44 +0000 http://johannesen.ca/yesorno/?p=184#comment-3919 I liked your post...it's not offensive, but I know that you know that it's just not that simple, is it? With the severely disabled, you can't get a life without help. No help, no life. While the ministry of health in Ontario has just misspent a billion or so on some stupid computer scam, my case manager is turning away parents with kids like ours saying...there is no money for help. A nursing shortage...no help. If you have help, is it good enough for you to leave your kid with....alone? Consider yourself lucky if your child goes to school.. mine doesn't because they won't let me accompany her as her helper, there aren't any nurses to accompany her because the nursing provider can't actually "provide"...on and on. Single parents...no money, no help, no life. What have I done about it? Well, we have contacted the ombudsman who is now in serious discussion with the ministry of health trying to change legislation that limits the bulk of funding to the currently non-existing nursing AND I blog!! Great friends, great conversations, people who understand...all the while in my own home, supervising my child. The other thing is that people may complain in their blogs...but isn't that cheaper (and more accessible) than a therapist? No one in my "life" understands our situation...nor do they care to. My blogger friends get it...big time...and I love them for that. I liked your post…it’s not offensive, but I know that you know that it’s just not that simple, is it? With the severely disabled, you can’t get a life without help. No help, no life. While the ministry of health in Ontario has just misspent a billion or so on some stupid computer scam, my case manager is turning away parents with kids like ours saying…there is no money for help. A nursing shortage…no help. If you have help, is it good enough for you to leave your kid with….alone? Consider yourself lucky if your child goes to school.. mine doesn’t because they won’t let me accompany her as her helper, there aren’t any nurses to accompany her because the nursing provider can’t actually “provide”…on and on. Single parents…no money, no help, no life. What have I done about it? Well, we have contacted the ombudsman who is now in serious discussion with the ministry of health trying to change legislation that limits the bulk of funding to the currently non-existing nursing AND I blog!! Great friends, great conversations, people who understand…all the while in my own home, supervising my child. The other thing is that people may complain in their blogs…but isn’t that cheaper (and more accessible) than a therapist? No one in my “life” understands our situation…nor do they care to. My blogger friends get it…big time…and I love them for that.

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