Jennifer Johannesen
My son Owen had multiple severe disabilities, most of which remained undiagnosed his entire life. Sadly, he passed away in October 2010, at the age of 12.
Since then, I have written a book (No Ordinary Boy) and I continue to share my experiences, opinions and perceptions of raising a child with multiple severe disabilities.
Thank you for visiting - your comments are most welcome!
No Ordinary Boy
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- Day to Day (75)
- Essays (26)
- Goings On (20)
- New Ideas (3)
- True Stories (21)
Tags
Angus author talks bloggers Bloom book reviews California Canada AM CBC interview cemetery cheerful pretend Collingwood communication CTV death decisions Derek Parfit DNR doctors Dominican Republic ethics fake work funding g-tube grief groupthink hope as snake-oil Los Angeles medica medical memories NICU No Ordinary Boy events Owen painting parent grand rounds parenting philosophy photo gallery prenatal school special education Spiral Garden teachers Toronto Star wheelchairTwitter
- Thanks @pwactoronto community for a fantastic evening last night! Great learning from fellow panelists @caromorris and James FitzGerald 2012/05/17
- blog post: New York City, a homecoming http://t.co/wupH5xxh 2012/05/10
- Are we becoming more hostile to #disability?Yes, if death (mercy killing) and disfigurement (ashley treatment) seen as options #bioethics 2012/04/30
Blogroll
- a moon, worn as if it had been a shell
- Bad Cripple
- Bloom (Holland Bloorview blog)
- Daniel's Gift
- Early Birdies
- Fighting Monsters with Rubber Swords
- Hammer to my World
- Healing, Empowerment and Thriving
- I am a broken man you can't break me
- Journeys with Autism
- Single Dad Disabled Daughter
- The Energy of X
- The Flight of our Hummingbird
- The Gort Family
- The Political Caregiver (Donna Thompson)
- Wheelchair Dancer
- Widening Circle

