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Raising a boy with multiple severe disabilities

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Author Archives: jennifer

part of a recent painting - the dolphin is a woodcarving, a posthumous gift for Owen from our trip to the Dominican

The best of intentions

February 1, 2012

I made a decision over the holidays:  no more promotion of my book (even though I hadn’t really even started yet!)  I decided: I will speak to groups when invited, but for now I will lay low and stop shopping … Continue reading →

Posted in media appearances | Replies: 2
Owen as a bat.  I can't find any pictures of him as a snake.

What I mean by Hope as Snake-oil (3 of 3)

January 27, 2012

Hope is a non-activity.  Like worry–an unproductive time-filler that distracts from the moment and takes us away from what is real and happening.  The thing that is hoped for–wealth, good fortune, tides turning in a favourable direction, acceptance– is determined … Continue reading →

Posted in ideas | Replies: 5
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Book signing

January 27, 2012

A brief interruption in my 3-part series to show a couple of photos of another great event! Indigo Mount Sinai book-signing. Thank you to everyone who came out! Several people who listened to the radio broadcast came to say hello, … Continue reading →

Posted in media appearances | Reply
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What I mean by Cheerful Pretend (2 of 3)

January 23, 2012

In my book I recount a number of moments of cheerful pretending  in Owen’s life (of which there were many), including: the accounts in Owen’s school communication book of achievements and interests–things he liked, friends he made, artwork he created–almost … Continue reading →

Posted in ideas | Replies: 18

What I mean by Fake Work (1 of 3)

January 21, 2012

I’ve had a hard time articulating a succinct message of the book, even to myself.  Carsten encourages me to not worry about it, says I’m an author with a story and I can promote different aspects of the book as … Continue reading →

Posted in ideas | Replies: 5
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Fake work, hope as snake oil, protecting childhood – and other inspiring topics

January 19, 2012

I was interviewed on CBC Radio One, Ontario Today with Rita Celli today.  I don’t listen to radio all that much and wasn’t familiar with the show – but a friend’s referral to the producer of Fresh Air started a … Continue reading →

Posted in media appearances, No Ordinary Boy | Replies: 8

CBC radio interview, short video, book signing

January 15, 2012

I’ll be on CBC Radio One’s Ontario Today with Rita Celli, this coming Thursday January 19, 12-1 pm.  It’s a call-in show–if you’re so inclined please participate!   The theme will be similar to what I am addressing at Holland Bloorview … Continue reading →

Posted in announcements | Replies: 1
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Upcoming parent workshop (free) at Holland Bloorview!

January 11, 2012

Holland Bloorview’s Bloom has launched an exciting new speaker series… and I’m honoured to be kicking off the series with a talk on Redefining Success. Details and poster below. Hope to see you there! Redefine success: Decide for yourself what … Continue reading →

Posted in announcements | Replies: 2
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Christmas ramblings

December 25, 2011

I sometimes experience waves of shock – surprising moments of sadness that roll through me like a sudden thunderstorm, sometimes lasting minutes, sometimes lasting days.  Like the first anniversary of Owen’s death when I couldn’t breathe for two weeks. Like … Continue reading →

Posted in musings | Replies: 2
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Another time and place

December 13, 2011

I spent a good part of my childhood living in a subsidized housing complex in Kitchener. I didn’t know that it was dingy or small or that our neighbourhood was poor or what government subsidy was.  I thought of it … Continue reading →

Posted in stories | Replies: 4
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Follow up post: ‘Grand Rounds’ for patients/parents

November 29, 2011

Since I posted the original idea for parent ‘grand rounds’, much dialogue has taken place! I’m sure no one will be surprised to learn that there is strong support from us regular folks… so I’d like to share some of … Continue reading →

Posted in ideas | Replies: 2
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An idea: Grand Rounds for patients/parents

November 23, 2011

I had a thought recently, while speaking at a pediatric conference here in Toronto.  I looked around at the attendees–chatting, sharing notes, comparing stories and anecdotes, listening to presenters delivering the latest research and case studies.  Why, I thought, do … Continue reading →

Posted in ideas | Replies: 12
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A night to remember

November 17, 2011

My launch party for the book was last night.  Before I go on, let me say:  it was a perfect night!  Very well attended (between 80-100 people), the room beautifully appointed, and I am quite happy (thrilled, really!) with my … Continue reading →

Posted in No Ordinary Boy | Replies: 5
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I do have fun sometimes too…

November 7, 2011

Someone near and dear to me said my blog is a bit of a downer.  He was joking of course, but I can’t disagree.  I think it serves the subject matter well–but, it seems, at the expense of sharing lighter … Continue reading →

Posted in family | Replies: 2
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On Hallowe’en I lied about it for the first time

November 6, 2011

Angus went trick-or-treating with some friends.  Had a fantastic time, in a neighbourhood that goes all out with decorations.  He had deliberated about his costume for weeks: a T1000 (you know. . . the liquid guy in Terminator 2); a … Continue reading →

Posted in family | Replies: 8

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Upcoming

- Parent Workshop at Holland Bloorview, Feb 15, 7-9 pm

- Guest on CBC Radio One's Alberta at Noon, Feb 6, 12:30 (Mountain)

- Guest on CBC Radio One's Blue Sky (Saskatchewan), Feb 6, 12:30 (Central)

- Download podcast from CBC Radio One's Ontario Today (Jan 19)

No Ordinary Boy

No Ordinary Boy is now available! Visit the website for more info and to purchase.

Things have changed

I started this blog 2 years ago in 2009, to explore communication options for my son with multiple, severe disabilities.

Sadly, Owen passed away in October 2010. He was 12.

I will be continuing to blog here as I move on to the next phase of my journey as Owen's mother - whatever that looks like.

Thank you for visiting,
- Jennifer

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Blogroll

  • a moon, worn as if it had been a shell
  • Bad Cripple
  • Bloom (Holland Bloorview blog)
  • Early Birdies
  • Fighting Monsters with Rubber Swords
  • Hammer to my World
  • Healing, Empowerment and Thriving
  • I am a broken man you can't break me
  • Single Dad Disabled Daughter
  • The Energy of X
  • The Flight of our Hummingbird
  • The Gort Family
  • Wheelchair Dancer

Recent Posts

  • The best of intentions
  • What I mean by Hope as Snake-oil (3 of 3)
  • Book signing
  • What I mean by Cheerful Pretend (2 of 3)
  • What I mean by Fake Work (1 of 3)
  • Fake work, hope as snake oil, protecting childhood – and other inspiring topics
  • CBC radio interview, short video, book signing
  • Upcoming parent workshop (free) at Holland Bloorview!
  • Christmas ramblings
  • Another time and place
Copyright Jennifer Johannesen 2012 All Rights Reserved