(Photo: Owen and Sallyanne) Another general update. Owen’s intrathecal baclofen pump was removed early February. The surgery itself was a great success – only 4 days in the hospital. He’d had a muscle biopsy as well (where a 2x2cm square … Continue reading
hi everyone, not all of you know owen had surgery yesterday for removal of the intrathecal baclofen pump; in case news traveled (and also of course to update you), the surgery went well and owen is doing fine. it was … Continue reading
(photo: ‘frontal bossing’ on full display) I haven’t blogged in many months and yet traffic to the site remains steady. Thank you for your continued interest :) I promise to add another post next week about how things are *really* … Continue reading
- a rare happy moment – A brief (recent) medical history and update: Owen is not responding to the medication in his intrathecal baclofen pump implant, either due to mechanical problems with the pump/catheter or changes in how his body … Continue reading
We’re still here. Easing quietly into Week 5. Finally time for a brief summary: I brought Owen to the hospital after a long night of fitful tremors and extreme spasticity. The spasticity I’ve seen before – but that was pre-baclofen … Continue reading
I’d rather tell the story when I know how it ends. Mostly pictures for now. Above: Before the delightful ‘nasal trumpet’ was removed. These 2 photos were taken this evening. Definitely improving. I can tell because he’s finally smiling.
Very brief photo journal of the past 3 days. To be continued.
In recent days, Owen’s spasticity has been through the roof. He’s so tight and reflexive, his joints look like they are dislocated (especially shoulders and wrists). As I type this, I can hear his wheelchair creaking from the strain of … Continue reading
