(Photo: Owen and Sallyanne)
Another general update.
Owen’s intrathecal baclofen pump was removed early February. The surgery itself was a great success – only 4 days in the hospital. He’d had a muscle biopsy as well (where a 2×2cm square of muscle was removed from his quadricep muscle – ouch). I think that probably hurt more than [...]
Filed under: baclofen pump issues, medical on April 8th, 2009 | No Comments »
hi everyone,
not all of you know owen had surgery yesterday for removal of the intrathecal baclofen pump; in case news traveled (and also of course to update you), the surgery went well and owen is doing fine. it was good timing to remove it – there was a large amount of spinal fluid accumulating around [...]
Filed under: baclofen pump issues, family, medical on February 10th, 2009 | No Comments »
(photo: ‘frontal bossing’ on full display)
I haven’t blogged in many months and yet traffic to the site remains steady. Thank you for your continued interest :) I promise to add another post next week about how things are *really* going. Until then, here’s a status update:
The medication in Owen’s intrathecal baclofen pump has been titrated [...]
Filed under: baclofen pump issues, medical on January 25th, 2009 | 1 Comment »
- a rare happy moment -
A brief (recent) medical history and update: Owen is not responding to the medication in his intrathecal baclofen pump implant, either due to mechanical problems with the pump/catheter or changes in how his body processes the medication. Over the course of many weeks in the hospital, he experienced [...]
Filed under: baclofen pump issues, medical on May 23rd, 2008 | No Comments »
Filed under: baclofen pump issues, medical on April 5th, 2008 | No Comments »
We’re still here. Easing quietly into Week 5. Finally time for a brief summary:
I brought Owen to the hospital after a long night of fitful tremors and extreme spasticity. The spasticity I’ve seen before – but that was pre-baclofen pump implant. The tremors were new. My first suspicion was [...]
Filed under: baclofen pump issues, medical on April 5th, 2008 | No Comments »
I’d rather tell the story when I know how it ends. Mostly pictures for now.
Above: Before the delightful ‘nasal trumpet’ was removed.
These 2 photos were taken this evening. Definitely improving. I can tell because he’s finally smiling.
Filed under: Uncategorized, baclofen pump issues, medical on March 22nd, 2008 | No Comments »
Very brief photo journal of the past 3 days. To be continued.
Filed under: baclofen pump issues, medical on March 12th, 2008 | No Comments »
In recent days, Owen’s spasticity has been through the roof. He’s so tight and reflexive, his joints look like they are dislocated (especially shoulders and wrists). As I type this, I can hear his wheelchair creaking from the strain of his thrusts. He’s been up for days, with sporadic 2-3 hr naps. [...]
Filed under: baclofen pump issues, medical on January 22nd, 2008 | 1 Comment »