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Raising a boy with multiple severe disabilities

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Category: communication – general

Asus computer

portable, adaptable communication

March 2, 2008

Talking and hearing. Two things most of us, including myself, can do without any props or devices. Which means I’m fairly portable – I can dash out the door and trust that if I need to communicate with someone about … Continue reading →

Posted in communication - general, equipment | Reply
Owen smiling

previously presented speech – ‘Emerging Communication’

February 21, 2008

Following is the speech/presentation I wrote and delivered for the Children’s Treatment Network – a new virtual therapy center for children with disabilities for York Region (the region north of Toronto). It is ‘virtual’ because there is no physical location … Continue reading →

Posted in communication - general, essays + speeches, social | Reply

response to last post

February 8, 2008

Regarding my last post, a comment from my dad, SKJ: You are surely too hard on yourself. “Presentable” and “regular” are the loaded words, the dark suspicion that your quest for communication is some sort of misguided response to shame. … Continue reading →

Posted in communication - general, movies/books/media | Reply

low tech vs. high tech

January 30, 2008

Owen had his communications assessment meeting yesterday, at Bloorview Kids Rehab, and it was fascinating. It will likely take several posts to distill it all – but I’ll start with the most compelling stuff. I have been assuming all this … Continue reading →

Posted in communication - general, equipment | Reply

communication breakdown

January 27, 2008

A couple of incidents over the past couple of days that make me realize just how imperfect the idea of a ‘communication system’ is… Incident 1 Owen is fed by g-tube and especially these days gets very little to eat … Continue reading →

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initial meeting

January 17, 2008

Decision is made: time to develop a proper home-based curriculum, and withdraw Owen from school once the programming and support are in place. I’m aiming for March, but this process could take until the end of the current school year. … Continue reading →

Posted in communication - general | Replies: 4

Upcoming

- Parent Workshop at Holland Bloorview, Feb 15, 7-9 pm

- Guest on CBC Radio One's Alberta at Noon, Feb 6, 12:30 (Mountain)

- Guest on CBC Radio One's Blue Sky (Saskatchewan), Feb 6, 12:30 (Central)

- Download podcast from CBC Radio One's Ontario Today (Jan 19)

No Ordinary Boy

No Ordinary Boy is now available! Visit the website for more info and to purchase.

Things have changed

I started this blog 2 years ago in 2009, to explore communication options for my son with multiple, severe disabilities.

Sadly, Owen passed away in October 2010. He was 12.

I will be continuing to blog here as I move on to the next phase of my journey as Owen's mother - whatever that looks like.

Thank you for visiting,
- Jennifer

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Blogroll

  • a moon, worn as if it had been a shell
  • Bad Cripple
  • Bloom (Holland Bloorview blog)
  • Early Birdies
  • Fighting Monsters with Rubber Swords
  • Hammer to my World
  • Healing, Empowerment and Thriving
  • I am a broken man you can't break me
  • Single Dad Disabled Daughter
  • The Energy of X
  • The Flight of our Hummingbird
  • The Gort Family
  • Wheelchair Dancer

Recent Posts

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  • Book signing
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  • Fake work, hope as snake oil, protecting childhood – and other inspiring topics
  • CBC radio interview, short video, book signing
  • Upcoming parent workshop (free) at Holland Bloorview!
  • Christmas ramblings
  • Another time and place
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