Talking and hearing. Two things most of us, including myself, can do without any props or devices. Which means I’m fairly portable – I can dash out the door and trust that if I need to communicate with someone about something, I can. I think about this a lot in respect to Owen. Not that [...]
portable, adaptable communication
by jennifer on 02. Mar, 2008 in communication - general, equipment
new wheelchair!
by jennifer on 17. Feb, 2008 in equipment, seating, switch use, wheelchair
Several days ago, Owen was kitted out with a demo wheelchair – the same one I discussed earlier in this blog. It’s called a Kids Rock dynamic wheelchair, and has a special spring-like action that engages when Owen becomes spastic or reflexive. If he thrusts (straightens at the hips while sitting), the hinge between the [...]
high tech. sort of.
by jennifer on 12. Feb, 2008 in equipment, switch use
As I continue to contemplate Owen’s capacity for choice-making (and his communication partners’ capacities for offering choices), I have not ruled out other options for communication. In a previous post I mentioned that he was very successful when using a switch-activated signal, which we used for ‘reading’ a book. (I would sign the part of [...]
low tech vs. high tech
by jennifer on 30. Jan, 2008 in communication - general, equipment
Owen had his communications assessment meeting yesterday, at Bloorview Kids Rehab, and it was fascinating. It will likely take several posts to distill it all – but I’ll start with the most compelling stuff. I have been assuming all this time that independence should be the final communication goal for Owen. To be able to [...]
‘Kids Rock’ dynamic wheelchair
by jennifer on 24. Jan, 2008 in equipment, seating, wheelchair
Here’s the website for the wheelchair described in the previous post, in case fetching the youtube video is too slow for your connection: http://www.kidsupco.com
back on track
by jennifer on 24. Jan, 2008 in equipment, medical, seating, wheelchair
It seems Owen’s increased tone was in fact due to the clonazepam withdrawal. He’s back on his previous dose (after consultation with his physician) and almost instantly, he returned to his old self. What a relief! I feel much more confident about the quality of his communication assessment next week – he’ll likely be in [...]
Recent Comments
6th Jul 10
The word 'random' strikes me. As actual for the reality.
5th Jul 10
That's an enlightening and sobering post. I keep thinking about whether we would have done the surgeries Ben had in ...
4th Jul 10
Thanks for your comments Pamela and Claire... I frequently hear stories of patients (and parents) dissatisfied with their encounters with specialists ...
3rd Jul 10
Wow, what a difficult post. I've read it over a few times and I get it. We are, ...
3rd Jul 10
Wow. As someone also navigating the Ontario medical system (with a younger child), I really appreciate the insight of ...
4th Jun 10
awesome photos. Very excited you got away to NYC. I would have a very hard time consenting to treatment that I ...
3rd Jun 10
Hey Louise, I would certainly guess it's been done more in the US - but everything at this point is anecdotal. ...
3rd Jun 10
That's very disappointing -- especially because of the incredibly vague responses re risks and benefits. It's easy for a surgeon to ...
2nd Jun 10
"I guess that saying is applicable here: when all you have is a hammer, everything looks like a nail. ...
10th May 10
I agree! And appreciate the honesty in both of your blogs.