Hope is a non-activity.  Like worry–an unproductive time-filler that distracts from the moment and takes us away from what is real and happening.  The thing that is hoped for–wealth, good fortune, tides turning in a favourable direction, acceptance– is determined … Continue reading →

In my book I recount a number of moments of cheerful pretending  in Owen’s life (of which there were many), including: the accounts in Owen’s school communication book of achievements and interests–things he liked, friends he made, artwork he created–almost … Continue reading →

I’ve had a hard time articulating a succinct message of the book, even to myself.  Carsten encourages me to not worry about it, says I’m an author with a story and I can promote different aspects of the book as … Continue reading →

Since I posted the original idea for parent ‘grand rounds’, much dialogue has taken place! I’m sure no one will be surprised to learn that there is strong support from us regular folks… so I’d like to share some of … Continue reading →

I had a thought recently, while speaking at a pediatric conference here in Toronto.  I looked around at the attendees–chatting, sharing notes, comparing stories and anecdotes, listening to presenters delivering the latest research and case studies.  Why, I thought, do … Continue reading →

It’s been 2 years and it’s time for an overhaul! I’ve reformatted the blog to accomplish a few things: update the look to something more modern (building websites is what I do after all!); add some visual ‘breathing space’ – old layout was feeling cramped ; share images from flickr ; redesign the look of the site so it isn’t SO much about Owen himself. Continue reading →