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owen laughing

And so now…?

by jennifer on 23. May, 2008 in baclofen pump issues, medical

- a rare happy moment – A brief (recent) medical history and update: Owen is not responding to the medication in his intrathecal baclofen pump implant, either due to mechanical problems with the pump/catheter or changes in how his body processes the medication. Over the course of many weeks in the hospital, he experienced what [...]

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moments

by jennifer on 05. Apr, 2008 in baclofen pump issues, medical

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Day 27

by jennifer on 05. Apr, 2008 in baclofen pump issues, medical

We’re still here. Easing quietly into Week 5. Finally time for a brief summary: I brought Owen to the hospital after a long night of fitful tremors and extreme spasticity. The spasticity I’ve seen before – but that was pre-baclofen pump implant. The tremors were new. My first suspicion was the pump – some element [...]

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Day 14

by jennifer on 22. Mar, 2008 in Uncategorized, baclofen pump issues, medical

I’d rather tell the story when I know how it ends. Mostly pictures for now. Above: Before the delightful ‘nasal trumpet’ was removed. These 2 photos were taken this evening. Definitely improving. I can tell because he’s finally smiling.

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hallway at sick kids

March Break

by jennifer on 12. Mar, 2008 in baclofen pump issues, medical

Very brief photo journal of the past 3 days. To be continued.

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back on track

by jennifer on 24. Jan, 2008 in equipment, medical, seating, wheelchair

It seems Owen’s increased tone was in fact due to the clonazepam withdrawal. He’s back on his previous dose (after consultation with his physician) and almost instantly, he returned to his old self. What a relief! I feel much more confident about the quality of his communication assessment next week – he’ll likely be in [...]

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difficult times…

by jennifer on 22. Jan, 2008 in baclofen pump issues, medical

In recent days, Owen’s spasticity has been through the roof. He’s so tight and reflexive, his joints look like they are dislocated (especially shoulders and wrists). As I type this, I can hear his wheelchair creaking from the strain of his thrusts. He’s been up for days, with sporadic 2-3 hr naps. This is one [...]

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