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Raising a boy with multiple severe disabilities

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Category: switch use

Owen in the Kids Rock

new wheelchair!

February 17, 2008

Several days ago, Owen was kitted out with a demo wheelchair – the same one I discussed earlier in this blog. It’s called a Kids Rock dynamic wheelchair, and has a special spring-like action that engages when Owen becomes spastic … Continue reading →

Posted in equipment, seating, switch use, wheelchair | Replies: 1
Switches

high tech. sort of.

February 12, 2008

As I continue to contemplate Owen’s capacity for choice-making (and his communication partners’ capacities for offering choices), I have not ruled out other options for communication. In a previous post I mentioned that he was very successful when using a … Continue reading →

Posted in equipment, switch use | Reply

Upcoming

- Parent Workshop at Holland Bloorview, Feb 15, 7-9 pm

- Guest on CBC Radio One's Alberta at Noon, Feb 6, 12:30 (Mountain)

- Guest on CBC Radio One's Blue Sky (Saskatchewan), Feb 6, 12:30 (Central)

- Download podcast from CBC Radio One's Ontario Today (Jan 19)

No Ordinary Boy

No Ordinary Boy is now available! Visit the website for more info and to purchase.

Things have changed

I started this blog 2 years ago in 2009, to explore communication options for my son with multiple, severe disabilities.

Sadly, Owen passed away in October 2010. He was 12.

I will be continuing to blog here as I move on to the next phase of my journey as Owen's mother - whatever that looks like.

Thank you for visiting,
- Jennifer

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  • a moon, worn as if it had been a shell
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  • Early Birdies
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  • Healing, Empowerment and Thriving
  • I am a broken man you can't break me
  • Single Dad Disabled Daughter
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Recent Posts

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  • What I mean by Hope as Snake-oil (3 of 3)
  • Book signing
  • What I mean by Cheerful Pretend (2 of 3)
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  • Fake work, hope as snake oil, protecting childhood – and other inspiring topics
  • CBC radio interview, short video, book signing
  • Upcoming parent workshop (free) at Holland Bloorview!
  • Christmas ramblings
  • Another time and place
Copyright Jennifer Johannesen 2012 All Rights Reserved