I have resisted posting more excerpts because… the book is finished! Mostly. Still some editing, re-organizing, layout etc. I’m a couple of months away from a real, tangible product, but the original writing is generally finished.
Once the cover design is finished, I will launch my new website at http://NoOrdinaryBoy.com, where you can learn more about the book itself.
Also upcoming: I’m running a workshop in November with Maria McDonald, bioethicist at Holland Bloorview Kids Rehabilitation Hospital. We will be presenting at the bi-annual Child Development Update Conference, which is attended by pediatric specialists and clinicians.
I hope to do more work in medical training and parent education once the book is finished. I’m still formulating an overall strategy – there will be more information about speaking engagements and workshops on the book website. I’m so excited about this and I can’t wait to see how it all unfolds!
To get a sense of what I might be offering, here is my bio for this particular conference:
Jennifer Johannesen is a speaker, author and blogger whose main themes of discourse include the challenges and ethics of substitute decision-making in healthcare. Her expertise was earned through experience; her 12 year old son, Owen, passed away in October 2010 after a lifetime of undiagnosed, severe multiple disabilities. Jennifer’s narratives highlight the often complex relationships between institutions, clinicians, patients, and parents – which can be further complicated by conflicting agendas and expectations. Jennifer is also a website developer and social media strategist.
(‘Substitute decision-making’ is a term from the ethics field, referring to a caregiver or guardian authorized to make decisions on behalf of someone else.)