Families and the ICF

I presented (virtually) at the European Academy of Childhood Disability Conference in Tbilisi, Georgia last week. 

The session was titled “Connecting ‘Patient-Reported Problems’ to ‘Patient-Reported Outcomes’ using the ICF (International Classification of Functioning, Disability and Health)” and my co-presenters were:

  • Olaf Kraus de Camargo, developmental paediatrician and researcher in ICF use
  • Liane Simon, special educator, researcher for transdisciplinary early intervention and ICF use
  • Gabriel Ronen, child neurologist and researcher

I sent in my part of the presentation as a video (see below). Even if you’re not familiar with the topic you may still find some of it interesting.

This talk is an adaptation of my chapter in a forthcoming book to be published by Mac Keith Press – ICF: Family, Community and Clinical Applications in Developmental Medicine – edited by Olaf Kraus de Camargo, Liane Simon and Peter Rosenbaum. In the presentation/chapter, I consider some of the risks of introducing the ICF to families. Have a look!

About the topic:

This talk considers applying the ICF in clinical practice, from a parent’s perspective. The ICF is described by the World Health Organization as follows:

“The International Classification of Functioning, Disability and Health, known more commonly as ICF, is a classification of health and health-related domains. As the functioning and disability of an individual occurs in a context, ICF also includes a list of environmental factors. ICF is the WHO framework for measuring health and disability at both individual and population levels.”

Dr. Olaf de Camargo (and many colleagues around the world) have embarked on a number of ICF-related research and development projects, including applying the ICF in clinical practice (the subject of this talk – Olaf’s slides are here), ICF as an international collaboration framework, and developing a mobile application that can support data collection, analysis, and information dissemination. 

A well-known adaptation of the ICF in childhood disability is CanChild’s “F-Words” research and initiatives, led by Dr. Peter Rosenbaum. You can learn more here

(If you subscribe to this blog by email you likely received a previous post twice – sorry about that, not sure why it happened.)

References in this video:


One Comment

  1. Jennifer, Your talk is a reminder to all of us who are using ICF that the classification is tool which must be used carefully and with due consideration for the impact on families as well as our own thinking. Thank you.

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