2019
2018
- September 28, 2018 - Study: Patient views on ‘ladders of engagement’
- June 3, 2018 - Families and the ICF
- April 2, 2018 - Considering patient engagement as ideology
- March 13, 2018 - Patient engagement – a collection of themes and critical thoughts
- January 21, 2018 - The time I didn’t get published in the BMJ
2017
- October 29, 2017 - Two-way street? A critical look at patient and family engagement
- September 30, 2017 - Reflections on what I don’t have to think about anymore
2016
- October 24, 2016 - What could be better than patient-centred care? Here are a few examples…
- June 15, 2016 - Fake work widens the class gap
- May 19, 2016 - A critical look at Patient and Family-Centred Care
- May 16, 2016 - Slippery slopes and safeguards
- April 16, 2016 - Sue MacRae Lecturer 2016
2015
- December 2, 2015 - In pursuit of a child’s potential
- May 25, 2015 - Advance directives – do you know what you’re signing up for?
- February 9, 2015 - Physician aid-in-dying
- January 22, 2015 - Ask Me Anything
2014
- October 16, 2014 - My academic foray into bioethics
- September 14, 2014 - On meeting my younger self
- September 14, 2014 - Conversations with…Christine
- August 18, 2014 - A visit to the old ‘hood
- July 29, 2014 - Whose “voice” is it anyway?
- July 3, 2014 - When I Was a Sailor
- June 25, 2014 - Conversations with… Marjorie
- June 22, 2014 - Conversations with…Donna Thomson
- June 10, 2014 - The Future of Care, in 3 minutes or less
- May 26, 2014 - Conversations with… Single Dad
- May 21, 2014 - We’re now programmed to self destruct
- May 12, 2014 - The impossibilities of informed consent
- May 4, 2014 - The debate about prenatal screening: where I stand
- April 1, 2014 - Accessing homeschooling funding for children with disabilities
- March 31, 2014 - Donna Thomson’s book launch
- March 11, 2014 - Shielded from the future
- February 21, 2014 - A video project
- February 17, 2014 - I thought I knew everything already (Part 2)
- January 16, 2014 - I thought I knew everything already (Part 1)
2013
- December 3, 2013 - A proposal: abstract submitted to Canadian Bioethics Society conference
- October 24, 2013 - 3 years since
- August 23, 2013 - Burn out
- August 18, 2013 - Fifteen
- August 1, 2013 - Higher education
- July 14, 2013 - Return
- May 30, 2013 - When a child dies
- March 30, 2013 - Heartland USA, just west of Toronto
- March 29, 2013 - On death, change and choices. And, back to school!
- February 26, 2013 - A dilemma for sonographers, and considering the greater good
- February 4, 2013 - “Bias and influence in decision-making”, Genetics rounds
- January 18, 2013 - My article in the latest Ars Medica journal: “Do Not Resuscitate”
2012
- December 27, 2012 - Newtown and me
- December 10, 2012 - What Owen doesn’t know
- November 1, 2012 - Death is hardest for those left behind
- October 20, 2012 - Ethics of Fetal Intervention, and another big idea
- September 27, 2012 - Dismantling ‘Team Owen’
- September 27, 2012 - Abilities Magazine passes on my best writing yet
- September 22, 2012 - Summer is over
- August 26, 2012 - Los Angeles, 2012
- July 20, 2012 - San Francisco, interview, book review
- July 1, 2012 - A day I think about, often
- June 7, 2012 - Sweetest boy in town
- May 29, 2012 - Have you ever met a deaf person?
- May 23, 2012 - My big theory of everything, or why stories are important
- May 10, 2012 - New York City, a homecoming
- April 29, 2012 - O Canada
- April 23, 2012 - The world is going mad: my commentary on so-called mercy killings
- April 17, 2012 - Ethics in Healthcare Decision-making
- April 6, 2012 - A personal update
- March 24, 2012 - UnConference for Caregivers of Children with Disabilities – proposal
- March 21, 2012 - Video, from talk at Holland Bloorview
- March 11, 2012 - How to make a disability disappear
- March 5, 2012 - New look for Yes or No, and a comment that made my day
- February 25, 2012 - My article about Fake Work, featured in Bloom’s recent publication
- February 23, 2012 - Groupthink and the value of friction (or, Why contrary opinions are helpful)
- February 11, 2012 - A revelation, while visiting a lovely little school
- February 4, 2012 - Owen at Spiral Garden – video and photos
- February 1, 2012 - The best of intentions
- January 27, 2012 - What I mean by Hope as Snake-oil (3 of 3)
- January 27, 2012 - Book signing
- January 23, 2012 - What I mean by Cheerful Pretend (2 of 3)
- January 21, 2012 - What I mean by Fake Work (1 of 3)
- January 15, 2012 - CBC radio interview, short video, book signing
- January 11, 2012 - Upcoming parent and clinician workshop (free) at Holland Bloorview!
2011
- December 25, 2011 - Christmas ramblings
- December 13, 2011 - Another time and place
- November 29, 2011 - Follow up post: ‘Grand Rounds’ for patients/parents
- November 23, 2011 - An idea: Grand Rounds for patients/parents
- November 17, 2011 - A night to remember
- November 7, 2011 - I do have fun sometimes too…
- November 6, 2011 - On Hallowe’en I lied about it for the first time
- October 31, 2011 - Book launch and reading
- October 23, 2011 - The day before the day
- October 16, 2011 - The body
- October 12, 2011 - Sick Kids
- October 8, 2011 - Early reviews
- October 7, 2011 - Another way of thinking and being
- September 29, 2011 - No Ordinary Boy is now available
- September 22, 2011 - Proof!
- September 11, 2011 - Mount Pleasant
- August 27, 2011 - Ongoing lessons in impermanence
- August 23, 2011 - Article in The Toronto Star
- August 19, 2011 - Owen’s birthday trip
- August 3, 2011 - Commemorations
- July 18, 2011 - Upcoming
- June 28, 2011 - Three times lucky (excerpt)
- June 21, 2011 - Accommodations (excerpt)
- June 9, 2011 - It’s enough to break your heart wide open
- June 7, 2011 - Filed under: decisions that don’t come easy (excerpt)
- May 30, 2011 - Bubby and the Whale (excerpt?)
- May 20, 2011 - More? (excerpt)
- May 16, 2011 - What remains
- May 4, 2011 - The pirate (excerpt?)
- April 27, 2011 - 6 months. Already. Only.
- April 19, 2011 - Some things are funny only with hindsight (excerpt?)
- April 10, 2011 - Brothers, vacations and wheelchairs
- March 28, 2011 - A Sunday morning (excerpt 8)
- March 23, 2011 - Spring break
- March 16, 2011 - Bedspace 9 (excerpt 7)
- March 10, 2011 - A child is born (excerpt 6)
- March 7, 2011 - The procedure (excerpt 5)
- March 4, 2011 - A visit to the hospital (excerpt 4)
- February 28, 2011 - Everything is different (excerpt 3)
- February 24, 2011 - A visit to the ultrasound clinic (excerpt 2)
- February 22, 2011 - A visit to the midwife (excerpt 1)
- January 29, 2011 - From the Shire to Mordor
- January 6, 2011 - Los Angeles
2010
- December 28, 2010 - A little help from his friends
- December 23, 2010 - An update
- November 24, 2010 - A few days away
- November 14, 2010 - How things are
- October 31, 2010 - Owen’s funeral
- October 27, 2010 - farewell, sweet owen
- October 10, 2010 - My one bad dream
- October 4, 2010 - Based on a true story
- October 2, 2010 - Birthday Cake
- September 12, 2010 - Summer Vacation
- August 13, 2010 - Words are cheap
- July 2, 2010 - Right is not always good
- June 2, 2010 - Underwhelmed for once
- May 8, 2010 - Shout out to my sistah
- April 10, 2010 - Revelations
- March 28, 2010 - New format, new purpose
- February 20, 2010 - “Ridiculously unreasonable, unsound, or incongruous…”
- January 30, 2010 - This is Not a Blog
- January 14, 2010 - Keep Calm and Carry On
2009
- December 20, 2009 - I must have been a Buddhist in a past life.
- December 9, 2009 - Impolitic
- December 5, 2009 - My Theory of Relativity
- November 21, 2009 - Funding and Support
- November 7, 2009 - Do Not Resuscitate
- October 15, 2009 - Good enough
- October 10, 2009 - Compassion Fatigue
- September 17, 2009 - HealthCamp
- September 15, 2009 - They’re almost always wrong
- September 10, 2009 - Friends?
- August 20, 2009 - Commencing Phase 2 (or is it 3? 4?)
- August 15, 2009 - Life as the Decider.
- August 4, 2009 - Is this the time I will look back upon and say “I had a feeling”?
- July 15, 2009 - After the media frenzy
- July 6, 2009 - Canada AM appearance
- July 5, 2009 - CTV website article
- July 4, 2009 - TV Appearances
- June 26, 2009 - Oh that? It was nothing after all.
- April 21, 2009 - MRI Brain Without Contrast
- April 8, 2009 - life after pump
- February 10, 2009 - email letter to my family
- January 25, 2009 - 6 months later: a ‘technical’ update
2008
- July 19, 2008 - summer camp
- May 23, 2008 - perspective
- May 23, 2008 - And so now…?
- May 2, 2008 - brothers
- April 5, 2008 - moments
- April 5, 2008 - Day 27
- March 22, 2008 - Day 14
- March 12, 2008 - March Break
- March 2, 2008 - portable, adaptable communication
- February 28, 2008 - outings and activities
- February 21, 2008 - previously presented speech – ‘Emerging Communication’
- February 20, 2008 - position available
- February 20, 2008 - an old article I wrote
- February 17, 2008 - new wheelchair!
- February 12, 2008 - high tech. sort of.
- February 8, 2008 - response to last post
- February 7, 2008 - Movie: The Diving Bell + The Butterfly
- January 30, 2008 - low tech vs. high tech
- January 27, 2008 - communication breakdown
- January 24, 2008 - ‘Kids Rock’ dynamic wheelchair
- January 24, 2008 - back on track
- January 22, 2008 - difficult times…
- January 19, 2008 - welcome!
- January 17, 2008 - initial meeting