Transcript of my talk delivered at the BC Support Unit’s 2019 conference, Putting Patients First. Vancouver, November 20 2019. Video recording courtesy of BC Support Unit. Engaging patients in research: it’s what we call a no-brainer, right? Meaning, it’s something… Continue Reading
I was commissioned by the Patient Partner Working Group of the Ontario SPOR Support Unit (OSSU) to write a paper exploring patient views on ladders of engagement in the context of patient engagement in research. I’m excited to share the… Continue Reading
As enthusiasm for PPI in health research increases, the tensions and conflicts experienced by both patients and researchers also become amplified. In this keynote Jennifer examines some of PPI’s problems by considering fundamental questions such as what is happening, why is it happening, and who is benefiting? Continue Reading
Patient engagement is a vision of patients as empowered, valued participants and institutions as eager learners, prepared to listen and act. Whether those beliefs are rooted in something real hardly matters. Continue Reading
Patient Engagement is difficult to write about because it’s poorly defined and usually discussed in broad strokes. This post attempts to identify separate themes so that I might have a way to clarify and focus my thinking, moving forward. Continue Reading
