Jennifer Johannesen

MSc Bioethics – author of No Ordinary Boy

          

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4

What could be better than patient-centred care? Here are a few examples…

Posted on October 24, 2016 by Jennifer

A patient’s reporting of symptoms or telling of their story to a physician, however compassionate that physician may be, is not the same thing as the patient’s full and valued participation in not only identifying and framing their own health issues, but also problem-solving and goal-setting. Continue Reading →

Bioethics 101, Essays and Lectures, New Ideas
0

Just Expectations: Should family caregivers be financially compensated for their work?

Posted on September 10, 2016 by Jennifer

This essay (lightly edited) was submitted as an assignment for my Medicine and Social Justice class, taught by Rosamond Rhodes, as part of the MSc Bioethics degree requirements for Clarkson University/Icahn School of Medicine at Mount Sinai (NYC). The assignment… Continue Reading →

Essays and Lectures
2

Why Bill C-14 must include the ‘reasonably foreseeable death’ clause

Posted on June 17, 2016 by Jennifer

I was asked to speak in a national forum to oppose proposed Senate amendments to Bill C-14, which outlines legislation for Medical Aid In Dying (MAID) in Canada. I presented the text below as one of nine speakers on the panel,… Continue Reading →

Essays and Lectures, Goings On
1

Fake work widens the class gap

Posted on June 15, 2016 by Jennifer

In my last post about Patient and Family-Centred Care, I made a passing reference to ‘fake work’ – a term I use to describe the administrative busywork required by parents and families in order to access and maintain services. I’ve… Continue Reading →

Essays and Lectures, New Ideas
19

A critical look at Patient and Family-Centred Care

Posted on May 19, 2016 by Jennifer

This post contains the text for my presentation as the 9th Annual Sue MacRae Lecturer, at the Joint Centre for Bioethics in May 2016. Continue Reading →

Essays and Lectures
1

Slippery slopes and safeguards

Posted on May 16, 2016 by Jennifer

My thesis is done! I’m not going to post it anywhere until I’ve graduated in a few weeks, but in the meantime, here is a summary (which I adapted from the abstract). Physician-Assisted Suicide: Slippery Slopes and Safeguards Although physician-assisted suicide (PAS) is legal… Continue Reading →

Bioethics 101, Essays and Lectures
2

Sue MacRae Lecturer 2016

Posted on April 16, 2016 by Jennifer

On this sunny Saturday, I am working on my speech as the Sue MacRae lecturer for 2016. Hope to see you there! 9th Annual Sue MacRae Lecture on Ethics and Patient-Centred Care May 18 2016, 4:10-5:30 University of Toronto Health… Continue Reading →

Day to Day, Goings On
6

In pursuit of a child’s potential

Posted on December 2, 2015 by Jennifer

In pursuit of a child’s potential: a parent’s reflections on hope and futility by Jennifer Johannesen (reprinted with permission from Brainstorm: A newsletter about ethics, neuroscience, and society. Prepared by the Neuroethics research unit at the IRCM. Vol 8 No… Continue Reading →

Essays and Lectures
1

Advance directives – do you know what you’re signing up for?

Posted on May 25, 2015 by Jennifer

Discussion of advance directives has popped up on my radar a lot lately. Could be my age (almost 45, which I optimistically consider the half-way mark) or my field of study (bioethics). Or, it could be that the need is… Continue Reading →

Bioethics 101, Essays and Lectures
5

Physician aid-in-dying

Posted on February 9, 2015 by Jennifer

I’m saddened by the recent Supreme Court ruling wherein the judges unanimously voted to remove restrictions on physician aid-in-dying. Many of my peers and friends are in support of this ruling and would perhaps be surprised I feel differently. I… Continue Reading →

Bioethics 101, Essays and Lectures

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