“Ridiculously unreasonable, unsound, or incongruous…”
Owen is a sweet, endearing boy by all accounts – which I think is the perception we all have because he smiles a lot and has a beautiful face. Continue Reading
medical
Keep Calm and Carry On
As Owen gets bigger and more wiggly I can sense the forthcoming horrific decisions that are coming my way. Continue Reading
They’re almost always wrong
I was told a few weeks ago that Owen’s hip was completely dislocated, as evidenced by an x-ray. Continue Reading
Oh that? It was nothing after all.
Sorry – I posted the MRI results and left everyone hanging. Turns out the results don’t really indicate anything in particular. Continue Reading
MRI Brain Without Contrast
Generalized cerebral atrophy is noted, with prominence of CSF spaces. Significant volume loss of the basal ganglia is noted, predominantly of the globus pallidus. Continue Reading
6 months later: a ‘technical’ update
I haven’t blogged in many months and yet traffic to the site remains steady. Thank you for your continued interest :) Continue Reading
And so now…?
A brief (recent) medical history and update: Owen is not responding to the medication in his intrathecal baclofen pump implant, either due to mechanical problems with the pump/catheter or changes in how his body processes the medication. Continue Reading
moments
Photos inside… Continue Reading
Day 27
We’re still here. Easing quietly into Week 5. Continue Reading
Day 14
I’d rather tell the story when I know how it ends. Mostly pictures for now. Continue Reading