Jennifer Johannesen
MSc Bioethics – author of No Ordinary Boy

          

Menu Close
  • Home
  • Consulting
  • Speaking
  • Publications
  • See All Posts
  • No Ordinary Boy
  • Contact

parenting

11

My big theory of everything, or why stories are important

Posted on May 23, 2012 by Jennifer

My child was born with severe, chronic, multiple disabilities.  Our path was not so much about fixing his problems as it was about ‘maximizing his potential’ and ‘harnessing his natural abilities’.  A modern and enlightened approach certainly, especially when compared… Continue Reading →

Essays and Lectures decisions, parenting, philosophy
4

An unpublished post from the past which I might have called ‘Being Owen’.

Posted on March 29, 2012 by Jennifer

I’ve been cleaning up my half-written draft posts this morning (which mostly means trashing them) and stumbled on this one.   I wrote it about two and a half months before Owen died. August 6 2010: For the past 2 (or… Continue Reading →

Essays and Lectures fake work, parenting
4

How to make a disability disappear

Posted on March 11, 2012 by Jennifer

Within months after Owen was born, I was told he was deaf. Inside, I shrugged. “Oh well,” I thought. He almost hadn’t been born. He almost hadn’t lived. He almost didn’t come home from the hospital at all. Deafness didn’t… Continue Reading →

Essays and Lectures communication, deafness, decisions, parenting
2

Good enough

Posted on October 15, 2009 by Jennifer

I am watching my boys growing and I am stunned at how quickly their childhoods are giving way to eventual adulthood. I get ahead of myself a bit perhaps – they’re only 9 and 11 – but they’re over half way to what we typically think of as ‘grown up’. Continue Reading →

Day to Day, Essays and Lectures Angus, Owen, parenting
1

Life as the Decider.

Posted on August 15, 2009 by Jennifer

I have been thinking lately about my role as Owen’s primary caregiver and advocate and the process involved in making tough medical and care-related decisions. Continue Reading →

Day to Day, Essays and Lectures decisions, parenting

Get Posts by Email

  

Tweets by @jenjohannesen

© 2021 Jennifer Johannesen. All rights reserved.
Hiero by aThemes