Jennifer Johannesen
MSc Bioethics – author of No Ordinary Boy

          

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Bioethics 101

Quotes and references acquired or produced through my academic studies.

27

Exploring the purpose and meaning of patient engagement in pediatric neurodisability research

Posted on November 8, 2017 by Jennifer

“It surprises me deeply that there is no oversight governing the involvement of patients and families in advisory roles in research, when the protection afforded them as research subjects is paramount.” Continue Reading →

Bioethics 101, Essays and Lectures
8

Two-way street? A critical look at patient and family engagement

Posted on October 29, 2017 by Jennifer

If healthcare really cared, we would be much further along by now.  Why are we still talking about what ‘meaningful’ looks like? Why are patient experts still not paid for their expertise? Why have we not developed a body of research to quantify the value of patient engagement? Continue Reading →

Bioethics 101, Essays and Lectures
0

We need more critical thinking in clinical bioethics if patient autonomy is what we seek

Posted on January 7, 2017 by Jennifer
person looking into the sun

What is clinical bioethics? In my graduate bioethics program, we considered a range of healthcare topics in the context of our society’s ever-evolving moral and technological landscape – topics such as autonomy and consent, justice, equity, the allocation of resources, pandemics,… Continue Reading →

Bioethics 101, Essays and Lectures, New Ideas
4

What could be better than patient-centred care? Here are a few examples…

Posted on October 24, 2016 by Jennifer

A patient’s reporting of symptoms or telling of their story to a physician, however compassionate that physician may be, is not the same thing as the patient’s full and valued participation in not only identifying and framing their own health issues, but also problem-solving and goal-setting. Continue Reading →

Bioethics 101, Essays and Lectures, New Ideas
1

Slippery slopes and safeguards

Posted on May 16, 2016 by Jennifer

My thesis is done! I’m not going to post it anywhere until I’ve graduated in a few weeks, but in the meantime, here is a summary (which I adapted from the abstract). Physician-Assisted Suicide: Slippery Slopes and Safeguards Although physician-assisted suicide (PAS) is legal… Continue Reading →

Bioethics 101, Essays and Lectures
1

Advance directives – do you know what you’re signing up for?

Posted on May 25, 2015 by Jennifer

Discussion of advance directives has popped up on my radar a lot lately. Could be my age (almost 45, which I optimistically consider the half-way mark) or my field of study (bioethics). Or, it could be that the need is… Continue Reading →

Bioethics 101, Essays and Lectures
5

Physician aid-in-dying

Posted on February 9, 2015 by Jennifer

I’m saddened by the recent Supreme Court ruling wherein the judges unanimously voted to remove restrictions on physician aid-in-dying. Many of my peers and friends are in support of this ruling and would perhaps be surprised I feel differently. I… Continue Reading →

Bioethics 101, Essays and Lectures
2

My academic foray into bioethics

Posted on October 16, 2014 by Jennifer

I’ve just started Year 2, studying bioethics. I’m due to graduate in 2016 with a Master of Science in Bioethics (policy specialization), from “The Bioethics Program of Union Graduate College and the Icahn School of Medicine at Mount Sinai”. (I was… Continue Reading →

Bioethics 101
5

We’re now programmed to self destruct

Posted on May 21, 2014 by Jennifer

“[Foucault’s] concept of technologies of self reveals that individuals participate in the policing process by monitoring their own behaviour… The power operating in technologies of self is not based in force but “in the exercise of self upon self by… Continue Reading →

Bioethics 101
8

The impossibilities of informed consent

Posted on May 12, 2014 by Jennifer

I’ve reprinted below an excerpt from a journal article I’m referencing in my upcoming presentation at the Canadian Bioethics Society conference, in Vancouver. It’s pretty much my whole argument (that informed consent is a faulty notion), summed up simply in… Continue Reading →

Bioethics 101

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