Longer form pieces. Theories, commentary, criticism, submissions to publications.
It’s been 14 years since Owen died. That’s 2 more years than how long he was alive. Which is both terrible and amazing for me to consider. I dreaded the “12 years since” mark for a long time. It’s come and gone, and now I truly feel that I’ve come out the other side. Since … Read more
I was invited to be part of the launch for the Caring in Canada report on May 1, published by the Canadian Centre for Caregiving Excellence. The report provides survey insights from caregivers and care providers across Canada, and includes policy recommendations for improving the experiences and lives of caregivers. As part of a small … Read more
The following is the transcript for a keynote I gave April 19, 2024 for Western University’s Faculty of Education Research Partners Day. Western recorded a video of the event. We’re here at the Faculty of Education’s Research Partner Day – a day to celebrate and showcase the community partnerships Western has fostered, and hear how … Read more
The following is the transcript of the talk I gave, as part of a panel, at the Canadian Caregiving Summit (Ottawa, November 2023). I presented alongside two amazing women, Brenda Blais Nesbitt and Michelle Wan, and the panel was moderated by Terrence Ho. I re-recorded the talk and distributed it via my podcast, Matters of … Read more
The following is the transcript for a keynote I gave April 21, 2022 for the annual Parkwood Institute Research Day. —– I’ll start with who I’m not: I’m not an academic, and I’m not employed in healthcare. I’m also not currently a partner in research or otherwise perform any roles as an engaged patient – … Read more
Video and transcript of my keynote presentation for the European Union COST Action (EVBRES) “2nd Evidence-Based Research Conference – Online”, presented September 27, 2021. I submitted a pre-recorded talk, and participated in a live panel discussion afterwards. Here’s the video and transcript! Download transcript (with timecode) here Hi, thanks so much for tuning … Read more
Transcript of my talk delivered at the BC Support Unit’s 2019 conference, Putting Patients First. Vancouver, November 20 2019. Video recording courtesy of BC Support Unit. Engaging patients in research: it’s what we call a no-brainer, right? Meaning, it’s something so naturally and obviously required it’s not worth putting energy towards justifying it. When anyone … Read more
I contributed a chapter to ICF: A Hands-on Approach for Clinicians and Families (available for purchase in Canada here), a practical guide published by Mac Keith Press, edited by Olaf Kraus de Camargo, Liane Simon, Gabriel M Ronen, and Peter L Rosenbaum.
I wrote a short piece for the inaugural issue of Brainstorm Magazine/Remue-méninges! This publication is produced by The Pragmatic Health Ethics Research Unit (formerly Neuroethics Research Unit), an interdisciplinary research group based at the Montréal Clinical Research Institute (IRCM). I am on the editorial board. Download PDF » Issue 1 – Summer 2019 Ethical implications of … Read more
Healthcare – especially public healthcare – is optimized for risk management. This will always be true despite talk of ‘personalized medicine’. It perpetuates its own truths and pre-approves acceptable choices for patients. Our experts and clinicians are trained to operate the system as it is, not to construct it on the fly according to each patient’s needs.