Patient Engagement

“Ethical implications of engaging patients in research” – keynote at Putting Patients First 2019, BC Support Unit, Vancouver, November 2019

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Transcript of my talk delivered at the BC Support Unit’s 2019 conference, Putting Patients First. Vancouver, November 20 2019. Video recording courtesy of BC Support Unit. Engaging patients in research: it’s what we call a no-brainer, right?  Meaning, it’s something so naturally and obviously required it’s not worth putting energy towards justifying it. When anyone … Read more

Study: Patient views on ‘ladders of engagement’

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I was commissioned by the Patient Partner Working Group of the Ontario SPOR Support Unit (OSSU) to write a paper exploring patient views on ladders of engagement in the context of patient engagement in research. I’m excited to share the final results: an in-depth, interview-based study including views of patients who are actively engaged in … Read more

“The trouble with patient and public involvement (PPI)” – keynote at Cochrane Colloquium 2018

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As enthusiasm for PPI in health research increases, the tensions and conflicts experienced by both patients and researchers also become amplified. In this keynote Jennifer examines some of PPI’s problems by considering fundamental questions such as what is happening, why is it happening, and who is benefiting?