Owen

A day I think about, often

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Owen would occasionally cry so deeply that if you were to witness him in those moments it would shatter your heart.  It would start small, imperceptible to those who are  unfamiliar–but once it began, there was no stopping it. Many tried to jiggle or funny-face or tickle him out of his despair, always losing in … Read more

Sweetest boy in town

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Michael found some video footage – a compilation of moments I had shot as a gift for his birthday, a year after Owen was born. Most of it included me narrating a rather boring and silly monologue as I roamed around the house filming this and that. But thankfully, I also filmed a lot of … Read more

Owen at Spiral Garden – video and photos

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Spiral Garden camp at Holland Bloorview, 2009. An unbelievably beautiful place.  Caption from the video on Youtube:

I just uncovered this video yesterday.  Owen attended the Spiral Garden summer camp at Holland Bloorview.  This video was shot in 2009 by Marjorie, one of his caregivers (who also worked at the camp). Sallyanne is holding Owen and Bethany is off to the side. (She accompanied them for the day to get a feel for the camp environment.)  The young woman facilitating the pottery is a camp staff member.

He was in a great mood – I can see the gleam in his eyes and the tell-tale drool, indicating deep focus and attention. Remarkable that he could leave his arm extended as long as he did.

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Christmas ramblings

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I sometimes experience waves of shock – surprising moments of sadness that roll through me like a sudden thunderstorm, sometimes lasting minutes, sometimes lasting days. Like the first anniversary of Owen’s death when I couldn’t breathe for two weeks.

Commemorations

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Owen’s 13th birthday is in 2 weeks, on August 18. We’ll be in London UK at the time for a 10-day vacation. We’ve decided to go up in the London Eye that day because Owen would have loved it.